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Klebsiella Bacteria and Th1 Immune Dominance

on May 12, 2019

Who else has had moments when things just start clicking? When you start recurrently seeing the same things through various research tracks you have taken? I don’t know whether to get excited or cry right now! We recently got the results of Rory’s uBiome Explorer test, and while Rory’s gut is actually in pretty good shape with a lot of really positive things happening, the Klebsiella bacteria has reared its ugly head again. It showed up on her stool test as dysbiotic last June and while I can’t compare apples to apples to see if it’s higher or lower now because the tests are very different (her POOP is definitely better now than it was then), it’s definitely still there in higher quantities than the average person (0.36% compared to around 0.01% from what I have seen from friends). I have fallen down a Klebsiella rabbit hole. Turns out it can cause...

Puzzle Pieces

on May 8, 2019

I hear many parents talk about how they wouldn’t change their special needs child, and while I always look at them in awe of their patience and steadfastness, I am not that parent.  I spend hours, days, weeks and months researching, talking to other parents, obsessing over and learning everything I can about treatments…that will change Rory.  I fully believe that she can and will improve–and is proving that every day–and that just accepting her the way she is would be doing her a disservice.  Realistically I know that I am doing at least close to everything I can possibly to do help her be her best Rory.  But as a parent who also has three other children who do NOT struggle with the same things she struggles with, here’s what I would really love to do. I would love to take a shred of Carter’s brilliance…his prodigy, a few of the extra IQ points...

Stem Cells and Apraxia: Rory’s 10 Month Update

on May 4, 2019

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Stem Cells and Apraxia Round 4: Rory’s Journal

on May 3, 2019

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Stem Cells and Apraxia Round 3: Rory’s Journal

on Feb 14, 2019

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