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Colors

on Oct 19, 2018

When we are born, everything is black and white.  Happy or sad.  Good or bad.  We quickly find red, too–the love of our parents–but the palette of a newborn is very basic and pure. As babies grow, explore and interact, more colors emerge.  The first smiles and giggles bring yellow for joy.  The outside world shines in sky blue, and the warmth of sunshine glows in orange.  First jealousy burns a vivid green.  The adoration of family is a royal purple.  The colors of infancy are primary, bright and simple. Young children gain an explosion of color with the emergence of curiosity and imagination. Instead of only red, there is a full spectrum from ballerina pink to angry crimson.  Blue ranges from the sheen of a bubble’s curve to the rich cool of the ocean. There is subtlety and shading giving a complexity to a child’s being.  It’s what gives them spark and...

Stem Cell Therapy & Apraxia: Rory’s 3-Month Report

on Sep 17, 2018

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Stem Cells & Apraxia: Rory’s Journal

on Jun 19, 2018

So as I mentioned in my last post (you can learn more about stem cell therapy and Rory’s treatment here) my plan is to journal here once a day to note any potential gains we can attribute to Rory’s stem cell therapy through each of the 65 replication cycles.  Note that there is a decent chance that NONE of these gains are the least bit related to her stem cell treatment and very well may have happened all on their own.  But I want to have a record of everything so at the end of the replication cycle I can go back and compare from start to finish how much she has hopefully changed, fingers crossed.  If you are curious to follow along on our journey, bookmark this post and check back every now and then. Cycle 1: Saturday, June 16th Despite getting home at 3am from our trip, we were up bright and early for ballet because it was our first day of summer session and Rory loves...

Believe in Miracles: Stem Cell Therapy & Apraxia

on Jun 19, 2018

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Flying With Special Needs: The Rumble at 40,000 Feet

on Jun 16, 2018

Sometimes the worst experiences in the moment become some of my favorite memories, because they make the best stories.  Like Rory’s meltdown on Small World at Disney World and then subsequent meltdown on Living With the Land (another boat ride) at Epcot, on which I started singing the Small World song.  Both rides were AWFUL when they were happening, but looking back I can laugh and be proud of myself for surviving.  Because let me tell you, having a special needs kid is HARD.  Having three typical kids as well, I can say that our Rory is most definitely different in how we can deal with her.  When she is having a meltdown, or spiraling as we call it, there is literally nothing we can do but ride it out.  And if you have a special needs kiddo as well, you likely know what I mean.  There is no bribery, no rationalizing, no yelling or spanking or time out or disciplining that is...