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Rory’s November Apraxia Update

By on Nov 19, 2017 in Apraxia |

When you take on the role of “special needs parent” it’s rarely something you planned for or expected.  I hear all the time, “I don’t know how you do it!” and honestly some days I don’t “do it” very well.  I yell (sometimes very loudly), I say things I regret, I mess up.  But as most special-needs parents will tell you, you have to fight for your child and be their advocate.  Even on my bad days, I know I do this part very well.

So that’s what I’ve been doing since my last post.  I’ve been refusing to accept that therapy is the only thing we can do to help Rory, so while spending a crap-ton of time in the therapy waiting room while Rory gets speech and OT for three two-hour blocks a week {with my crazy one year old} I have been reading books, researching, and talking to other moms who are in a similar {lovely} boat and comparing strategies to come up with better ones.  I thought it would be good to update those of you who are following along on our journey and also to preserve some of the progress Rory has made in the almost 2 months since I last posted.

 

Life with Rory is still HARD and CHALLENGING every day, but I feel like the hard parts are further apart while the good parts are coming more frequently.  I hope we can continue to make progress with her behavior and more gains with her communication in the coming months and years.  Our goal is to have her caught up by kindergarten so she is able to attend the elementary school where the boys go.  So that gives us 2.5 more years, fingers crossed.  If she’s not caught up by then we will cross that bridge when we come to it, but I have so much hope that we are finally on the right track.  As I’ve been typing this blog throughout the day today, Rory and Owen have both been getting into trouble, making me crazy, etc. since they have not had my full attention, but as I finish it up, Rory is sitting next to me, snuggling and trying to give me hugs and kisses.  Life with Rory is not what I expected it to be, but we are certainly getting there.